https://www.mosaicminds.org/forums/ Thu, 09 Apr 2026 08:29:21 +0000 MyBB https://www.mosaicminds.org/forums/showthread.php?tid=2955 Sun, 23 Aug 2020 23:32:25 -0700 https://www.mosaicminds.org/forums/showthread.php?tid=2955 1
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Okay so long story short, some of us have Asperger’s syndrome which has given us expert level academic medical knowledge without the creditials to back it up. Despite the lack of MD behind their name these alters know a lot. They have been reading medical journals for fun for the last 23 or so year ( since the body was 13) and at the moment, they are about 80-90 percent certain that our body has either skin cancer or pre-skin cancer.

So far all the drs we have been to have done zero diagnostics testing they just keep giving us different medicine to try on the rash which is all over. We have had enough. We want them to to biopsy stuff. All the crap they keep having us try has side effects. Daniel is a chemist and he is helping the asperger’s guys figure out stuff to try based on what they think it is but only because they promised to continue seeking diagnostic confirmation. He thinks that throwing medicine at unconfirmed stuff is very dangerous. Now, he is starting to think they aren’t really trying because he doesn’t understand the American medicine system since he is in England.
So we need to find someone ( not necessary from here) to practice the no more throwing medicine at this until we know for sure what it is conversation. It’s becoming a major strain on our most important relationship: Daniel ( who we just call dad to make it easier for outside mono-minded people). Thanks for any suggestions.]]> 1
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Okay so long story short, some of us have Asperger’s syndrome which has given us expert level academic medical knowledge without the creditials to back it up. Despite the lack of MD behind their name these alters know a lot. They have been reading medical journals for fun for the last 23 or so year ( since the body was 13) and at the moment, they are about 80-90 percent certain that our body has either skin cancer or pre-skin cancer.

So far all the drs we have been to have done zero diagnostics testing they just keep giving us different medicine to try on the rash which is all over. We have had enough. We want them to to biopsy stuff. All the crap they keep having us try has side effects. Daniel is a chemist and he is helping the asperger’s guys figure out stuff to try based on what they think it is but only because they promised to continue seeking diagnostic confirmation. He thinks that throwing medicine at unconfirmed stuff is very dangerous. Now, he is starting to think they aren’t really trying because he doesn’t understand the American medicine system since he is in England.
So we need to find someone ( not necessary from here) to practice the no more throwing medicine at this until we know for sure what it is conversation. It’s becoming a major strain on our most important relationship: Daniel ( who we just call dad to make it easier for outside mono-minded people). Thanks for any suggestions.]]> https://www.mosaicminds.org/forums/showthread.php?tid=2943 Wed, 22 Jul 2020 22:05:41 -0700 https://www.mosaicminds.org/forums/showthread.php?tid=2943
Indoor cats don't get into fights leaving chance for infection. Even with yearly shots they can get infections. Hit by cars... Keep your cat indoors if you love them.

This is my niece Juliet. Very happy indoors.Never sneaks out on Mom or Dad. Only when I babysit.

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Indoor cats don't get into fights leaving chance for infection. Even with yearly shots they can get infections. Hit by cars... Keep your cat indoors if you love them.

This is my niece Juliet. Very happy indoors.Never sneaks out on Mom or Dad. Only when I babysit.

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I buzzed some neighbours but nobody answers here. Weird people. I called 2 friends and texted a third. I got phone calls back but my phone was in the living room but I had fallen flat on my back on the bathroom floor.It took me half an hour to get up. My phone was in the other room but even if it had been next to me the buzzer on the front door doesn't work.

Time to move. Except, I have to wait until Covid clears and that could be a while.]]>
I buzzed some neighbours but nobody answers here. Weird people. I called 2 friends and texted a third. I got phone calls back but my phone was in the living room but I had fallen flat on my back on the bathroom floor.It took me half an hour to get up. My phone was in the other room but even if it had been next to me the buzzer on the front door doesn't work.

Time to move. Except, I have to wait until Covid clears and that could be a while.]]> https://www.mosaicminds.org/forums/showthread.php?tid=2935 Thu, 18 Jun 2020 06:31:58 -0700 https://www.mosaicminds.org/forums/showthread.php?tid=2935 The actual tumour accounts for only 00.05% of OC and tbh it took me ages to actually get Drs to believe my symptoms in the first place.
I have become aware of some of the same symptoms recently but am at a loss to know how long they have been going on.
I have very little communication with the many within and can often be replaced by other parts that take over for long periods at a time and with no knowledge of the tumour let alone of the subsequent operation.
I am waiting for a CT scan ( have no idea how long this wait is as so much has been delayed due to covid 19) but have noticed what I think is slight bleeding. Again I can't be sure it is this as is so faint but am fairly convinced this is the case..
Parts within refuse to believe this and so I haven't told my GP of this latest symptom.
Everything is so piecemeal ..the lack of any reporting within is difficult to cope with and the fear of looking a fool when they find nothing wrong continues to haunt me..even as logically I know something has to be wrong.
Has anyone ever found a way through this sort of stuff?
I have to say almost all parts within refuse to write anything down..none as far as I'm aware really speak to each other and I am only aware of some of them by somehow being allowed to listen but from a distance ( not sure I can explain any better than that)
Thanks for reading]]> The actual tumour accounts for only 00.05% of OC and tbh it took me ages to actually get Drs to believe my symptoms in the first place.
I have become aware of some of the same symptoms recently but am at a loss to know how long they have been going on.
I have very little communication with the many within and can often be replaced by other parts that take over for long periods at a time and with no knowledge of the tumour let alone of the subsequent operation.
I am waiting for a CT scan ( have no idea how long this wait is as so much has been delayed due to covid 19) but have noticed what I think is slight bleeding. Again I can't be sure it is this as is so faint but am fairly convinced this is the case..
Parts within refuse to believe this and so I haven't told my GP of this latest symptom.
Everything is so piecemeal ..the lack of any reporting within is difficult to cope with and the fear of looking a fool when they find nothing wrong continues to haunt me..even as logically I know something has to be wrong.
Has anyone ever found a way through this sort of stuff?
I have to say almost all parts within refuse to write anything down..none as far as I'm aware really speak to each other and I am only aware of some of them by somehow being allowed to listen but from a distance ( not sure I can explain any better than that)
Thanks for reading]]> https://www.mosaicminds.org/forums/showthread.php?tid=2917 Mon, 04 May 2020 10:35:53 -0700 https://www.mosaicminds.org/forums/showthread.php?tid=2917 https://www.mosaicminds.org/forums/showthread.php?tid=2905 Wed, 01 Apr 2020 22:51:02 -0700 https://www.mosaicminds.org/forums/showthread.php?tid=2905 I also had the rash on my arms break out. The rash is not unusual but this time it was hot too. I chatted with a neighbour on the phone and am now wondering if it is my body wash. Any body wash. No explanation for the fever though.

So I chose to self-isolate. I rarely get fevers. More prone to it running low. Better safe than sorry.]]> I also had the rash on my arms break out. The rash is not unusual but this time it was hot too. I chatted with a neighbour on the phone and am now wondering if it is my body wash. Any body wash. No explanation for the fever though.

So I chose to self-isolate. I rarely get fevers. More prone to it running low. Better safe than sorry.]]> https://www.mosaicminds.org/forums/showthread.php?tid=2904 Wed, 01 Apr 2020 13:30:29 -0700 https://www.mosaicminds.org/forums/showthread.php?tid=2904 https://www.mosaicminds.org/forums/showthread.php?tid=2901 Wed, 25 Mar 2020 13:52:34 -0700 https://www.mosaicminds.org/forums/showthread.php?tid=2901
Today I read a news article. It was about the social isolation caused by the pandemic added to addictions.

We have really cut back on our drinking since we came off the world's worst drug. Cymbalta. Drugs never work well for us but this was hell. Anyway, while we are back to drinking in moderation we are also back to food binges. The cat and I are both going to get very fat. Well, the cat is already there.

I hear my T and pdoc telling me to push myself to go out walking. However, my best walks are when I have a destination and other than the grocery store where we spent way too much money yesterday everything is closed. There is no destination whatsoever. We could walk to a coffee shop and get take out but that seems pointless.

I don't share my ED with anyone in 3D. A face just flashed into my brain. I had supper with an old friend before the craziness started. She has lost a tonne of weight. So I won't be sharing with her. God this is tough. And nobody is posting here so while I am alone in my apartment I don't think I am alone in my suffering. Sadly that doesn't help.

If you are reading, please acknowledge.Just say hi or something.]]>
Today I read a news article. It was about the social isolation caused by the pandemic added to addictions.

We have really cut back on our drinking since we came off the world's worst drug. Cymbalta. Drugs never work well for us but this was hell. Anyway, while we are back to drinking in moderation we are also back to food binges. The cat and I are both going to get very fat. Well, the cat is already there.

I hear my T and pdoc telling me to push myself to go out walking. However, my best walks are when I have a destination and other than the grocery store where we spent way too much money yesterday everything is closed. There is no destination whatsoever. We could walk to a coffee shop and get take out but that seems pointless.

I don't share my ED with anyone in 3D. A face just flashed into my brain. I had supper with an old friend before the craziness started. She has lost a tonne of weight. So I won't be sharing with her. God this is tough. And nobody is posting here so while I am alone in my apartment I don't think I am alone in my suffering. Sadly that doesn't help.

If you are reading, please acknowledge.Just say hi or something.]]> https://www.mosaicminds.org/forums/showthread.php?tid=2893 Thu, 05 Mar 2020 13:04:54 -0800 https://www.mosaicminds.org/forums/showthread.php?tid=2893
I had a food addiction that is now controlled by celiac disease. I think the wine has replaced the food that I am now restricted from. The list grows longer all the time. Eggs are the latest to go. Very sad as they are such an easy meal that I enjoy. I used to buy beer and have 1-2 but GF beer is expensive.

I know you don't drink but even Ts who do drink don't understand the complexities of my ED issues. If I was to look at point Zero it would probably be Grey with red string moving across the map to other teens. Like I said, complex. But what about DID is easy? Well, Two is easy as she has daily therapy with Katy the Kitty so we always know what she is thinking.

I am sorry if you felt insulted. I enjoy your conversations and I was out of line with the way I spoke.

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I had a food addiction that is now controlled by celiac disease. I think the wine has replaced the food that I am now restricted from. The list grows longer all the time. Eggs are the latest to go. Very sad as they are such an easy meal that I enjoy. I used to buy beer and have 1-2 but GF beer is expensive.

I know you don't drink but even Ts who do drink don't understand the complexities of my ED issues. If I was to look at point Zero it would probably be Grey with red string moving across the map to other teens. Like I said, complex. But what about DID is easy? Well, Two is easy as she has daily therapy with Katy the Kitty so we always know what she is thinking.

I am sorry if you felt insulted. I enjoy your conversations and I was out of line with the way I spoke.

  everything.jpg (Size: 49.08 KB / Downloads: 8) ]]> https://www.mosaicminds.org/forums/showthread.php?tid=2874 Tue, 28 Jan 2020 14:49:42 -0800 https://www.mosaicminds.org/forums/showthread.php?tid=2874 https://www.mosaicminds.org/forums/showthread.php?tid=2865 Tue, 07 Jan 2020 21:05:29 -0800 https://www.mosaicminds.org/forums/showthread.php?tid=2865 https://www.mosaicminds.org/forums/showthread.php?tid=2852 Mon, 11 Nov 2019 20:43:14 -0800 https://www.mosaicminds.org/forums/showthread.php?tid=2852 https://www.mosaicminds.org/forums/showthread.php?tid=2851 Sat, 09 Nov 2019 15:55:06 -0800 https://www.mosaicminds.org/forums/showthread.php?tid=2851
I am 61. This hs been going on for a long time. I know that if I exercised more it might get better but I go from one fall recovery to another.

I do know that sometimes the cause is switching. It is hard to get one's feet planted properly when someone steps in front of you without warning. I used to miss grabbing the door going into a mall. Now I miss the sidewalk. I try very hard to go to the flat part of the crosswalk, the area made for wheelchairs. However, last time I got my right foot placed properly but not the left one. Soon I will have no skin whatsoever on that knee.]]>
I am 61. This hs been going on for a long time. I know that if I exercised more it might get better but I go from one fall recovery to another.

I do know that sometimes the cause is switching. It is hard to get one's feet planted properly when someone steps in front of you without warning. I used to miss grabbing the door going into a mall. Now I miss the sidewalk. I try very hard to go to the flat part of the crosswalk, the area made for wheelchairs. However, last time I got my right foot placed properly but not the left one. Soon I will have no skin whatsoever on that knee.]]> https://www.mosaicminds.org/forums/showthread.php?tid=2848 Thu, 07 Nov 2019 01:39:33 -0800 https://www.mosaicminds.org/forums/showthread.php?tid=2848 ]]> ]]> https://www.mosaicminds.org/forums/showthread.php?tid=2815 Wed, 21 Aug 2019 21:28:59 -0700 https://www.mosaicminds.org/forums/showthread.php?tid=2815
I texted T and told her about wounds. How they often trigger me. I end up living in the upside down world, (For people who have watched that show - Stranger Things)]]>
I texted T and told her about wounds. How they often trigger me. I end up living in the upside down world, (For people who have watched that show - Stranger Things)]]> https://www.mosaicminds.org/forums/showthread.php?tid=2802 Tue, 25 Jun 2019 18:04:27 -0700 https://www.mosaicminds.org/forums/showthread.php?tid=2802 https://www.mosaicminds.org/forums/showthread.php?tid=2746 Sat, 16 Mar 2019 16:21:15 -0700 https://www.mosaicminds.org/forums/showthread.php?tid=2746 https://www.mosaicminds.org/forums/showthread.php?tid=2745 Sat, 16 Mar 2019 16:10:38 -0700 https://www.mosaicminds.org/forums/showthread.php?tid=2745 https://www.mosaicminds.org/forums/showthread.php?tid=2670 Fri, 19 Oct 2018 12:41:51 -0700 https://www.mosaicminds.org/forums/showthread.php?tid=2670 https://www.mosaicminds.org/forums/showthread.php?tid=2665 Thu, 11 Oct 2018 00:34:52 -0700 https://www.mosaicminds.org/forums/showthread.php?tid=2665
It is very sad to hear some of these stories. Well, actually all of them but some more than others. So many of the heavy people are enabled. A man whose story was very sad. He was so heavy. Rather than trying to help him doctors gave him pills for his pain. The pain was caused by the excess weight. Imagine carrying three people around all the time.

He became addicted to the pain pills. When he went to the place that is focused on in the series they weaned him off the pain pills. It was very sad how much that negatively impacted his weight. He gave up and he didn't survive.

How sad. Why am I telling this story? So many of the stories involved abuse or neglect. A new story is on now and the woman has just told the story of her childhood. How food was her go to thing. In most of the stories the weight gain started as young as 6.

Do any of us have a codependent person in our lives? Or were they in our past? Last week I watched one woman who liked the fact that she could guilt her mother into helping her because of their past. It is very sad. People destroying the ones that they love by feeding them to death. Or whatever else it is they do as a co-dependant.]]>
It is very sad to hear some of these stories. Well, actually all of them but some more than others. So many of the heavy people are enabled. A man whose story was very sad. He was so heavy. Rather than trying to help him doctors gave him pills for his pain. The pain was caused by the excess weight. Imagine carrying three people around all the time.

He became addicted to the pain pills. When he went to the place that is focused on in the series they weaned him off the pain pills. It was very sad how much that negatively impacted his weight. He gave up and he didn't survive.

How sad. Why am I telling this story? So many of the stories involved abuse or neglect. A new story is on now and the woman has just told the story of her childhood. How food was her go to thing. In most of the stories the weight gain started as young as 6.

Do any of us have a codependent person in our lives? Or were they in our past? Last week I watched one woman who liked the fact that she could guilt her mother into helping her because of their past. It is very sad. People destroying the ones that they love by feeding them to death. Or whatever else it is they do as a co-dependant.]]>